Archives for posts with tag: Jenny Diski

The first instalment of Jenny Diski’s reflections on her recent cancer diagnosis has appeared in The London Review of Books (http://www.lrb.co.uk/v36/n17/jenny-diski/a-diagnosis).

It is essential reading.

I have always loved Diski’s writing (Skating to Antartica particularly). I read the current article – ‘A Diagnosis’ – with sadness, but also with joy. It is vitally Diski – funny, brave and real – and I am grateful that when faced with the challenge of dealing with her recent cancer diagnosis, she decided to share her experience.

She asks the question:

‘A fucking cancer diary? Another fucking cancer diary… Can there possibly be anything new to add?’

Yes. Diaries afford the possibility of witnessing the experiences of others, and although experiences may overlap and share some similarities, each individual one is unique and invaluable as a direct result of its very subjectivity. Thus, each personal experience is by definition original and irreproducible. The value of reporting such experiences is that, although we cannot truly share them, as invited readers we can listen, witness and hopefully affirm the living of another. Michael Palin speaks of diaries as the antidote of hindsight. Which they are, and as the nearest expression we can get to the possibility of understanding what it might be to exist in someone else’s shoes, they can be the most invaluable and authentic of literary forms.

Especially from Jenny Diski’s pen.

‘The future flashed before my eyes in all its pre-ordained banality. Embarrassment, at first, to the exclusion of all other feelings. But embarrassment curled at the edges with a weariness, the sort that comes over you when you are set on a track by something outside your control, and which, although it is not your experience, is so known in all its cultural forms that you could unscrew the cap of the pen in your hand and jot down in the notebook on your lap every single thing that will happen and everything that will be felt for the foreseeable future.’

The ‘Onc Doc’ slipped in at the outset that the goal was ‘to treat, not to cure’. It is salutary to consider both what is often said and what is mostly unspoken during this most critical of person-to-person interactions. Raymond Carver’s poem on the same topic of cancer diagnosis comes to mind:

What The Doctor Said

He said it doesn’t look good
he said it looks bad in fact real bad
he said I counted thirty-two of them on one lung before
I quit counting them…

… and he said something else
I didn’t catch and not knowing what else to do
and not  wanting him to have to repeat it
and me to have to fully digest it
I just looked at him
for a minute and he looked back it was then
I jumped up and shook hands with this man who’d just given me
something no one else on earth had ever given me
I may have even thanked him habit being so strong

 

Diski also reflects on the doctor/patient relationship:

‘It’s quite hard to rapidly absorb the notion that someone forecasting your fairly imminent death might not be your enemy.’

‘Sullen rudeness is a possible option handed to us cancerees.’

She considers the language used. When given a prognosis of ‘two-to-three-years’, what is actually being said? Is ‘Onc Doc’ favouring 2, or 3, with the extra year tagged on as a hopeful gesture? What does this timeframe meaningfully equate to in terms of how we normally live our lives:

‘Will the battery on the TV remote run out first?’

Suddenly thrown into another sphere, that of the ‘Cancer World’, Diski contemplates the role she may now be forced to play:

‘I am and have always been embarrassed by all social rituals that require me to participate in a predetermined script’.

‘Now I was faced with the prospect of a rather lengthy (in one view) public/private performance by which to be excruciated.’

She rejects metaphors of attack, and refuses to personify the cancer cells in her body:

‘Under no circumstances is anyone to say that I lost a battle with cancer. Or that I bore it bravely. I am not fighting, losing, winning or bearing.’

In the face of her diagnosis and all its inherent challenges, Diski answers her own question ‘why another cancer diary’. She is a writer. It is what she does.

‘So I’ve got cancer. I’m writing.’

 

CQ

 

I had my first experience of a Death Cafe event last night. Conceived approximately three years ago, the cafes are spaces where people come to ‘drink tea, eat cake and discuss death’ (http://deathcafe.com/). The aim of the movement is to facilitate an openness and awareness of death, thereby enhancing the quality of our lived and finite lives.

Although it was more supper and wine on the menu last night than tea and cake, the event lived up to and exceeded any expectations I might have had. It may seem odd to those who rarely dwell on the inescapable and shared fact of our immortality, but being in an environment where people openly shared their thoughts and fears, and non-fears, on the ultimate taboo subject was enlightening and refreshing. And not in the least bit depressing…

Over the past few days, I have read some interesting and diverse pieces on death and dying.

Firstly, a systematic review by Lehto and Stein on death anxiety (http://deepblue.lib.umich.edu/bitstream/handle/2027.42/66464/?sequence=1). Death anxiety in this context is ‘a term used to conceptualize the apprehension generated by death awareness.’ An all-pervasive anxiety, I suspect, which seems to have been heightened by the technologically advanced and led world we currently live in, where anything is or should be possible, including immortality, or at the very least an indefinite postponement of death.

The aim of the study was to identify factors that contribute to or are significantly associated with death anxiety. Lack of robust data on the topic limited the power of the review to draw definitive conclusions, but, unsurprisingly, important antecendents of death anxiety appear to include ‘stressful environments and the experience of unpredictable circumstances’, as well as personal experience of a life-threatening illness/event, and with death and dying. At my table last night, we pretty much all reported such life experiences to some extent, although the apparent levels of anxiety appeared to vary within the group. A complex issue.

I also came across the writer Jenny Diski’s recent musings on death and dying (http://www.berfrois.com/2013/12/jenny-diski-on-night-and-more/). In an amusing piece titled ‘Dirty Dying’, Diski considers her personal relationship with thinking about death:

‘I’ve never understood about boredom…But how can anyone be bored when there’s always death to think about? Every day. Every hour. Don’t you? All the rest is just evading or glossing the real subject of our lives.’

While currently re-reading Anatole Broyard’s Intoxicated By My Illness, I encountered this thought-provoking reflection from a 30 year old man dying from leukemia:

‘I don’t think people are afraid of death. What they are afraid of is the incompleteness of their lives.’

Which brings me to what I most enjoyed, and which both reassured and liberated me, during and subsequent to  last night’s Death Cafe event: there was no evasion, no avoidance, but instead, for those moments there existed the real possibility of talking about death in a welcoming and open environment, where people chatted, shared and laughed about lives that include death as a (mostly) welcome and also essential component of how we live. That is not to say that everyone present was accepting and comfortable about the prospect of their own death and dying and that of their loved ones. At times, there was an almost palpable sadness and grief. But that was ok, and it was also ok to talk about such feelings. Accepting death does not preclude grief and the profound sense of loss that one experiences for those who are no longer physically present in one’s life.

I end with Pablo Neruda and his succinct conclusion on the topic in the poem A Dog Has Died:

‘There are no good-byes for my dog who has died,

and we don’t now and never did lie to each other.

So now he’s gone and I buried him.

and that’s all there is to it.’

CQ